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Addi's FOP Journey
overcoming fibrodysplasia ossificans progressiva one day at a time.
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Addilynn
She won't let 3 little letters get in the way of anything.
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The Black Family
We are Shannon, Daren, and Addi. Contact us at dandsblackfamily {at}gmail.com
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fopsverige | Sneda stortår en rak tumme och konstiga knölar? FOP = ACVR1(c.617G>A; R206H)
FOP Action - Fibrodysplasia Ossificans Progressiva Awareness
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Bingo for a Cure - Joshua Scoble
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