Addilynn loves to be on the run. She loves to dance and climb. She loves to listen to music and sing. The truth is that at any time FOP can take these things away from her.
...but there is hope.
Everyday research keeps going forward and gets closer to a cure. 75% of research is funded by the family and friends of FOP patients. People like you make a difference. If you are able to even make a small donation it would be appreciated. EVERY penny helps.
Addi loves life. She loves being able to do the things she wants to do and doesn't let the calcification in her leg stop her. However as more calcifications form her choices will become more and more limited. We are in a race against time to find a cure. Please join us in her cause by donating to IFOPA and donating to the research campaign and including her name in the comment section so that we can send you a thank you note for your generosity!
With much love,
The Black Family
Click here to donate to IFOPA research!